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Showing posts with the label Caregiving

Lost in Circles in Surprise AZ: Parkways, Ice Cream Sandwiches & Why Silver Alerts Make Total Sense

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Lost in Circles in Surprise AZ: Parkways, Ice Cream Sandwiches & Why Silver Alerts Make Total Sense 🌵 Desert Girl Goes to the City: Sun Valley Parkway, Ice Cream Sandwiches, and Two Cranky Desert People Accurate representation of us navigating Surprise AZ with no A/C at 4 PM. 🦀🦀 The Day the GPS Lost Its Mind (and Took Us With It) There are days when the desert feels like a quiet friend — and then there are days when it decides to test your patience, your marriage, and your ability to remember which road is which. We had a medical appointment on a part of town we don't usually navigate. Simple enough. Clear weather. Nothing dramatic. Except the GPS had other plans. First it sent us past the turn. Then it sent us back the other way. Then it tried to route us onto the freeway — which, as every desert person knows, is where chaos lives at 4 PM. Hard pass. By the third wrong turn, somewhere in Surprise, we were already behind. The car had been sitting in ...

Hyperbaric Oxygen Therapy for Parkinson's and Alzheimer's: From Skeptic to TELL ME MORE

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I was watching Dave Mac's No Carb Life channel the other day — specifically an episode called "They Said It Would Only Get Worse" featuring a couple named Dean and Jodie. If you haven't seen it, it's worth your time. It's sitting at over 93,000 views and climbing. Now I'll be honest. I've been skeptical of oxygen therapy for years — remember those Japanese oxygen bars? Flavored air at normal pressure while you sip a smoothie. That's not this. HBOT is pressurized to 1.5 to 3 times normal atmosphere, which is what forces oxygen deep into your tissues and brain. The pressure is the whole point. So when I started listening to Jodie describe her experience inside the chamber — the ear pressure, the sessions, the commitment — didn't necessarily convince me on the spot. I'm a caregiver. I've heard a lot of "miracle" claims over the years, and my guard goes up fast. But what it DID do was drive me t...

Fishing with Parkinson's: How Tenkara Brings the Joy Back to the River

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Darla in the Desert: hard-earned lessons from life, the internet, and a desert that melts your patience first. Send ice! It started with a simple question in a Parkinson’s caregiver group. Fishing is one of those things that quietly disappears as the disease progresses. Not all at once — just little pieces at a time. The balance. The grip. The patience for the small, frustrating parts… like trying to hook bait when your hands won’t cooperate. Someone mentioned a word I had never heard before: Tenkara . So I asked. Because here’s the thing — my husband doesn’t fish much anymore. And I’ve watched that loss happen slowly. Not just the fishing itself, but everything that came with it… the time outside, the rhythm, and the laughter with other men who understood that quiet language of the water. But our son lives near an area where fishing is still possible. So the question wasn’t just curiosity. It was about time spent with loved ones — a chance to have a fairly norm...

Trapped in 105° Heat: What Really Happened at Luke Days 2026

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As an Amazon Associate, I earn from qualifying purchases. Some links may earn a small commission at no extra cost to you. Before You Read This — What Actually Happened That Day On Saturday March 21, 2026, Luke Days airshow in Glendale, Arizona recorded temperatures of 105 degrees — tarmac temperatures can run up to 20 degrees hotter, meaning ground-level heat approached 125 degrees. By end of day: over 400 people contacted by medical personnel. At least 25–30 hospitalized for heat exhaustion, dehydration and overheating. Officials confirmed roughly 90% were under 12, over 60, or had pre-existing conditions including heart disease, diabetes or pregnancy. Sunday the show was cut short. Entry stopped at 1 PM. The event ended at 3:30 instead of 5 PM. My husband has Parkinson's disease and is currently undergoing lung cancer treatment. He was in that parking lot for nearly 4 hours on Saturday. He was exactly the demographic officials were worried about. This ...

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Caregiving: The Unwritten Rules We Don’t Talk About Including the part where we quietly doctor the doctor. Caregiving comes with invisible responsibilities no one prepares you for. Somewhere along the way, the system hands you the emotional clipboard and says, “Here, you seem responsible. You take it.” The 6 Unwritten Rules You become the historian. You repeat yourself. A lot. You manage the room. You translate. You doctor the doctor. You keep going — and somewhere in there, you develop patience you never asked for. 1. You Become the Historian You remember everything. The dates. The side effects. The medication changes. The test that was ordered but never scheduled. The inhaler that somehow sat untouched for six months. You become the living medical record because sometimes the chart doesn’t tell the whole story. 2. You Repeat Yourself. A Lot. New nurse. New specialist. New receptionist. Same explanation. You learn to say it calmly. Clearly. Without edg...