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Showing posts with the label Parkinson’s caregiving

Parkinson's Sleep Crisis: Gabapentin, Urinal Bags, and the Night That Finally Worked

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Darla in the Desert: hard‑earned lessons from life, the internet, and a desert that melts your patience first. Send ice! UPDATE 05/18/26 This is just a note to encourage you all: gabapentin seems to be doing the trick for the possible neuropathy. The neurologist has referred Dave out, and we may be getting an EMG. I’m sharing this so you can better prepare for doctor visits if you’re having similar symptoms. Moving the gabapentin to twice a day has helped tremendously. Taking it alongside the Parkinson’s medication also seems to help with sleep. The balance issues are now mostly a bygone thing — even simple trips to the bathroom are easy again. On extra-tired nights, the bedside urinal bags still help because uninterrupted sleep matters But now it feels more like a convenience than a necessity. Of course, hubby still milks the situation a little so he can get his bedtime mug of hot chocolate — and honestly, I’m thrilled to hand over this miracle l...

Caring for a Partner with Parkinson’s: Tools and Emotional Support

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Caring for a partner with Parkinson’s means learning to manage medications, sleep disruptions, exercise routines, emotional changes, and doctor communication all at once. These practical caregiver strategies come from real-life experience navigating Parkinson’s day by day. In this post, I mention the ways AI supports my caregiving work — because without it, my supplement organization would be chaos, and my ability to search deeply for information would be nearly impossible. Caring for a Partner with Parkinson’s: Practical Steps Description: Rock Steady Boxing — a Parkinson’s‑focused exercise program that supports balance, strength, and confidence through movement. Caring for someone with Parkinson’s is unlike any other journey. The physical changes, medication swings, emotional shifts, and unpredictable symptoms can push even the strongest caregivers to their limits. Practical Steps to Discuss with the Neurologist 1. Review Medication Timing Morning drowsiness...